Congressional hearings would allow people to testify about the ways in which having a psychiatric diagnosis has been harmful or helpful to them. This could be a major step leading toward exploration of ways to retain helpful aspects while reducing harmful ones. Because psychiatric diagnosis is so deeply embedded in many major systems, including the mental health system, health insurance systems, government (Medicare and Medicaid), training programs for therapists, the legal system, pharmaceutical companies, and others this kind of national conversation is essential as a way to come to understand the various ways that psychiatric diagnosis is used and what systems are most open to making changes that would reduce the harm that is done.
 
In the fall of 2004, a letter requesting endorsers for a call for Congressional hearings about psychiatric
diagnosis went out via email to a small number of individuals and organizations. That letter is here below; it includes a description of the kinds of harm that can result from simply getting a psychiatric diagnosis, and it also includes the information that psychiatric diagnosis, unlike drugs, is unregulated. The number of people and groups to whom the letter was initially sent was small. This was an initiative that was independent of any group and totally unfunded. The list of endorsers who came from that emailing can be found under the category "Original Endorsers" by clicking on "Endorsers of call for hearings" on the home page. The "Original Endorsers" are those to whom the letter was first sent or who received it via forwarding by an original recipient.  Others wishing to endorse can do so by clicking on the link at the end of the following letter.

We hope that after reading the information on this website, readers will contact their United States Senators and Representatives and members of state legislatures, express their concerns, and ask them to take steps to protect the public.  members of Congress can help by making congressional hearings happen.  Members of state legislatures could, among other things, investigate ways to introduce legislation that would ensure that the discipline bodies for psychiatrist, psychologists, social workers, and other psychotherapists will take responsibility for being fully informed about psychiatric diagnosis and for fully informing their patients.  (see also the Lawsuits section of this site.)

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Dear Colleague:

Request
We are writing to ask you not for any time or money but simply to co-endorse our call for Congressional Hearings about psychiatric diagnosis in an attempt to explore the nature and extent of harm that many Americans have suffered solely because of being given a psychiatric label. The aim of the hearings would be to find ways to prevent this harm, beginning with a clear-sighted examination of the totally unregulated nature of psychiatric diagnosis.  Many people have the mistaken impression that the Food and Drug Administration oversees psychiatric diagnosis, but nothing could be further from the truth.

 In 2002 and 2003, two Congressional Briefings were held on this subject, co-sponsored by a dozen groups concerned with health matters and by New York Congresswoman Louise Slaughter.

The Need
This call is not an attack on or a questioning of psychotherapy or even diagnosis across the board but simply an attempt to draw attention to this minimally-investigated enterprise of psychiatric diagnosis and to find ways to protect people from the harm that can result. The kinds of harm have included loss of the right to make decisions about one’s legal and medical affairs, loss of health insurance or sky-high premiums, loss of child custody, and plummeting of self-confidence.

This issue affects people across the spectrum, regardless of social class, education, sex, race, and age.

The Problem
Few laypeople or even therapists realize that psychiatric diagnosis is not a scientific endeavor, although some of the most powerful people and organizations in the mental health field assert that it is. As a result, millions of people who seek help because they are suffering have no idea that they are not being diagnosed in scientific ways and thus that their treatment largely lacks a scientific basis; nor do they know that in important ways their treatment may be experimental because they are given labels that may not stand for anything that has been proven to exist. Furthermore, although drugs can be helpful for some people, it is important for the public and their therapists to know that they are often prescribed to treat diagnostic “entities” that may not even exist. Patients have a right to try anything that might help them, including medication, but it is essential that they do so after being fully informed of the limitations of the diagnostic labels that are usually the basis for therapists’ treatment recommendations.

The absence of science creates a vacuum, and biases and distortions rush in. This happens in three ways:

1.      Such biases as racism, sexism, ageism, classism, and homophobia powerfully affect psychiatric diagnosis, becoming partial determinants of who gets a psychiatric label and of the seriousness of the label that is chosen.

2.      Serious problems such as depression are overlooked as people are diagnosed with unproven “mental illnesses” such as Compulsive Shopping Disorder or Premenstrual Dysphoric Disorder.

3.      Many people who are suffering because of social problems like poverty or because they are victims of hate speech or violence are wrongly treated as though the problems come from within them.

Why Congressional Hearings?
First and foremost, the purpose of a Call for Congressional Hearings is to put psychiatric diagnosis, with its problems and possible solutions, on the national, public agenda.

There are many reasons for choosing the Congressional Hearings route, related to numerous ways this is a federal issue.

What Can You Do?
 All we ask of you is that you grant permission to have your name or that of your organization listed as a co-endorser of this Call for Congressional Hearings which we want to issue in the form of a press release.


Sincerely yours,

Paula J. Caplan, Ph.D., Director
Coalition for Informed Patients and Doctors
26 Alpine St.,  Cambridge, MA 02138

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* This is the slightly edited text of the request for endorsers that was sent to a small number of organizations and people in the fall of 2004.




Working Toward Solutions

In order to reduce the kinds and amount of harm done by psychiatric diagnosis, six approaches may be helpful. Please click on the links below:


Add Your Endorsement:
Add Your Organization as a Co-Endorser
Add Yourself as a Co-Endorser